| |
Digital Health Record / BI Capture
Health Informatics: A
Roadmap for Autism Knowledge Sharing
Oberleitner, R,
Wurtz, R, Popovich, M, Moncher, T, Laxminarayan S, Reischl, U
Medical and Care
Compunetics - 2, ed: Bos,
Laxminarayan, Marsh, June 2005
Abstract:
With the prevalence of diagnosed autism on the rise, increased
efforts are needed to support surveillance, research, and case
management. Challenges to collect, analyze and share typical and
unique patient information and observations are magnified by
expanding provider caseloads, delays in treatment and patient office
visits, and lack of sharable data. This paper outlines recommended
principles and approaches for utilizing state-of-the-art information
systems technology and population-based registries to facilitate
collection, analysis, and reporting of autism patient data. Such a
platform will increase treatment options and registry information to
facilitate diagnosis, treatment and research of this disorder.
Information Technology and Behavioral Medicine:
Impact on Autism Treatment & Research
Medical and Care Compunetics, IOS
Press, June, 2004
Abstract: The rising incidence of autism with limited professional
resources has led to more consideration for using information technology
and related specialties to link families and professionals, and to
implement strategies which implement information technology to improve
the outcomes for individuals with autism and their families. These are
reviewed in context of the unique health, education, and the research
issues facing those dealing with autism.
The Potential of a Store & Forward Tele-Behavioral
Platform for Effective Treatment and Research of Autism
IEEE – Engineering in Medicine and
Biology Proceedings, Sept, 2004
Abstract: This paper describes the justification and the design
principles of a behavioral medicine store & forward telemedicine
platform to facilitate the capturing and communication of spontaneous
patient behaviors for the improved evaluation, diagnosis and ongoing
treatment of people with autism. This Tele-Behavioral Health platform
will allow families and other caregivers to readily capture spontaneous
patient behaviors for subsequent evaluation by appropriate medical
specialists.
Improving the quality of education through
videophones: How Individuals with Autism Can Benefit
Advocate (Autism Society of
America magazine), Oct, 2004
Abstract: Jim Ball, Ed.D. writes about professionals are using
videophones in the classroom, and how individuals with autism are
benefiting.
Technologies to Lessen the
Distress of Autism
Journal of Aggression, Maltreatment and Trauma, In
press, 2004
Abstract: This article explores aspects of autism that make it a
potential traumatic stressor for family members, and may put them at
risk for Post Traumatic Stress Disorder (PTSD) and/or its sub-syndromal
variants. It also surveys current trends in autism, including the
growing number of families affected by autism. This article will then
focus on relevant technology trends being used to mediate or ameliorate
aspects of living with autism. This technology includes: telehealth,
distance education, information technology, video-conferencing, and
computer software.
BI Capture
Hayes, G.R., Kientz, J.A.,
Truong, K.N., White, D.R., Abowd, G.D., Pering, T. Designing Capture
Applications to Support the Education of Children with Autism.
Proceedings of UBICOMP 2004: The 6th International Conference
on Ubiquitous Computing (September 7-10, Nottingham, England), 2004
Hayes, G.R.
and
Truong, K.N. Using Wearable Devices to Take Advantage of
Environmental Services. IEEE Pervasive Computer Magazine, 2005.
Hayes, G.R.,
Truong, K.N., Abowd, G.D., Pering. T. Experience Buffers: A Socially
Appropriate, Selective Archiving Tool for Evidence-Based Care. In
the Proceedings of CHI’05 (April 2-7, Portland, OR, USA), 2005.
Pharkute, S, Oberleitner, R, Laxminarayan,
S, Suri, J, Zhang, H (2005) – Telemedicine Application Which
Leverages Low Bandwidth Connectivity, Annual Meeting of the American
Telemedicine Association, Colorado, April, 2005
Presentations
This presentation
describes the observations from case studies using a behavioral medicine
store & forward telemedicine platform featuring video clips of children
with autism. This platform facilitates the capturing and communication
of spontaneous patient behaviors for real-time evaluation, diagnosis and
ongoing treatment of people with autism by appropriate health, education
and family support specialists. The data is captured and stored in a
secure, central data repository. A unique feature of the system is its
capability to archive and index video and other data for future access
and to compare behaviors and treatments over time by clinicians and
other researchers. Case studies will reinforce the effectiveness of the
platform’s utility to facilitate diagnosis, treatment, and general case
management of patients with autism. Such a system will serve as a
precursor to further advances in other health information technology
applications leading to more effective treatment and the understanding
of this disability, and other neurological disorders.
Click Here
|
